- ADDER for Dystonia
 - Aims to inform and assist about types of Dystonia. - Bachmann-Strauss Dystonia & Parkinson Foundation, The
- Supporting research towards discovering the cause and cure for Dystonia and Parkinson's Disease. Includes events schedule and publications.
- Care4Dystonia
- Patient-advocacy nonprofit group committed to increasing the awareness, quality of care, and distribution of research funding within the area of Dystonia care.
- Dystonia Medical Research Foundation
- Works to increase an understanding of dystonia through research, awareness, and support.
- Dystonia On-Line Support Group
- Includes general information, chat room, medical article library, links, and more.
- Dystonia Society
- UK-based national charity supporting people who have any form of the neurological movement disorder.
- MoveMD.net
- Information for patients and physicians about new treatments and surgical techniques for Parkinson's Disease, dystonia, and other neurological conditions.
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